Good morning I'm Donna, mother of 4, 3 daughters 1 son. My son was diagnosed with Soto's Syndrome in 1990. First let me say that in my bio there was not an option for an older child so that is why it states the age as it does...(sorry, not meant to be misleading) Wes (Wesley) was full term, 10 lbs. 14 oz. 19 1/2" long and the first of my 4 to be natural birth...insert the big OUCH here...the only problem I had during pregnancy, I was hypoglycemic. My doctor assured me that this would have no affect on my child. I just had to stay away from any and all sweets...Have you ever told that to a pregnant mama? LOL I knew he was having troubles when it came time for him to start holding his head up and he seemed to have great difficulty in doing so. He also was very messy when taking his bottle (drooled it often and could not seem to keep the milk in his mouth) I had taken him to several local doctors and they all said the same thing...he will grow into his body, he's a big child. I finally took him to a specialist in Birmingham, Alabama the first one does not even rate with me cause she basically told me he was a lost cause. The 2nd one then explained that he has Soto's Syndrome. He has a high arched pallet the reasoning for him not being able to drink properly from a bottle. He has fine motor skills, learning disabilities, speech impediments, and when he was younger (7-10 yr) he had anger issues. He is now 30 yrs old and is the most loving, caring, kindest gentleman you will ever meet. He loves to fish, hunt, take things apart to see what on the inside, and now he is taking an interest in driving. We live in the country so we let him drive to and in our pasture or to his sisters house (1/4 mile from our house) ONLY while we are in the vehicle. He has aged out of any sort of help we have here and I never even thought to look online for families with similar children. I am very glad to have found this site and look forward to hearing and learning more.