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hi i have a son with sotos and would like to talk to other people in this position
Hi my son has sotos he is 2 years old
Hi @pogdog24 and @roxy88 - it might also be helpful for you to join this group - https://community.cafamily.org.uk/group/26-sotos-syndrome - it's pretty quiet at the moment but we are going to be adding more links and info - and it means that any new parents of children with sotos who join the community will be able to find and link up with you.
Alex (CAF mod)
hi roxy my son is 34 years old so i will probably be of some help to you.the first thing to know is that the children with sotos improve with age .at 5 years old we thought ian would never talk but now you would nt know he ever had a problem.he is still living at home but we are looking at assisted living which is going to be a long process as he doesnt want to leave us.if you have any questions please let me know and i will try to answer pogdog