Spina bifida families in enfield U.K.?

Hi there, my name is Emete, I live in London (Enfield) with my gorgeous 2 year old daughter who has a rare form of spina bifida (myelocystocele) and is seen at GOSH. I never managed to find the time to search for other families with SB kids but have always wanted somebody to share/discuss medical info and stories with. I don't know any other parents with kiddos like mine in the UK. I ask all my questions on American forums as the mums seem to know so much and are so helpful. However it would be nice to meet up and make a lasting friendship with somebody local with a baby like mine. Hope this post manages to do that for me


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