Larsens syndrome

My son is 1 year old and was diagnosed with larsens syndrome at a month old has multiple dislocations with knees, hips and elbows. He is behind in progressing with normal.milestones as he can't hold his head up from.the floor can't sit up unaided. And also feel he's behind with his development is anyone else have any of these issues? Is there anyone else on here with larsens syndrome? 

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