Larsens syndrome

My son is 1 year old and was diagnosed with larsens syndrome at a month old has multiple dislocations with knees, hips and elbows. He is behind in progressing with normal.milestones as he can't hold his head up from.the floor can't sit up unaided. And also feel he's behind with his development is anyone else have any of these issues? Is there anyone else on here with larsens syndrome? 

Comments

  • Alex_ContactAlex_Contact Moderator
    Hi @laura1990 , if you're looking to chat to other parents it might also be worth trying one of the Facebook groups for Larsen Syndrome who have an international membership. Larsens Syndrome*Larsen Syndrome is closed group that you can join, you can find the group here - http://www.facebook.com/groups/larsensyndrome/  Hope that helps, take care, Alex (Contact)
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