Epilepsy consultant terrified my child
My 12 year old daughter who has hemiplegia and newly diagnosed epilepsy saw a new consultant at hospital yesterday. The consultant stated that as she was 'grown up' he would talk to her in a straightforward manner. He surprised me by telling her that she was at risk of dying in her sleep (this wasn't news to me but I was surprised that he told her this). She is now (understandably) extremely upset and is avoiding sleeping. Lack of sleep is one of the key triggers for her seizures. I wondered if anyone had any advice on how I can reassure her. Many thanks.
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