CCTGA, Large VSD, tricuspid hypoplasia, pulmonary stenosis
I am a new member and looking for advice, My beautiful baby boy was diagnosed with very complex rare heart defects ( CCTGA, Large VSD, tricuspid hypoplasia, pulmonary stenosis). Our whole world just turned upside down when we heard this news. We have 2 more healthy boys 7 and 4 years old. we would do anything to give them what ever care they needs but thinking of the financial uncertainty as well. We both used to work and now the newborn baby would need much more looking after and multiple surgeries and hospital stays. I would look after my newborn and husband would need to look after my other boys. In this situation I am scared what would I do financially. please advice If i can get any financial help from any charities of Gov in this situation. My baby's hospital sen a letter to my council to rehouse us asap because of baby's health condition but council didn't reply. Baby is going to have his first open heart surgery in 3/4 weeks and i am panicking.
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