Comments

• roxy88 Member

  March 2017

  Hi my son has sotos he is 2 years old

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• Contact Community Manager

  April 2017

  Hi @pogdog24 and @roxy88 - it might also be helpful for you to join this group - https://community.cafamily.org.uk/group/26-sotos-syndrome - it's pretty quiet at the moment but we are going to be adding more links and info - and it means that any new parents of children with sotos who join the community will be able to find and link up with you.
  Cheers
  Alex (CAF mod)

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• pogdog24 Member

  April 2017

  hi roxy my son is 34 years old so i will probably be of some help to you.the first thing to know is that the children with sotos improve with age .at 5 years old we thought ian would never talk but now you would nt know he ever had a problem.he is still living at home but we are looking at assisted living which is going to be a long process as he doesnt want to leave us.if you have any questions please let me know and i will try to answer pogdog

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