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16p13.11 deletion

Join this group to:

Find others affected by 16p13.11 deletion.
Ask the group a question.
Share thoughts and experiences.
Let others know you are there to chat.
Share information on local and national support groups.

Medical information

Contact a Family does not currently produce information on 16p13.11 deletion. That means this group has an even more important role in helping parents connect and share knowledge. You can visit our medical information pages to find out more about Chromosome disorders or call our freephone helpline on 0808 808 3555.

You know a lot about what’s out there. Please help us build this space by sharing links, knowledge, support group info and research. Contact a Family provide some tips to help you judge the quality of information you find online.

Our helpline may still be able to help. Call us free on 0808 808 3555.

Is there support?

Use this group to get support from other parents of children with 16p13.11 deletion.

Feel free to share information about on or offline support groups in the discussions below.

This is your space - help us build this group in a way that works for you.

Before you post, please have a look at our community guidelines.

Owner: Chris_ContactLeaders: Chris_ContactCreated on September 8, 20173 membersPrivacy: Public


Important stuff will go here one day.


Please use this space to ask questions or add anything that might be useful to other parents. Links, support groups and additional information are all helpful.

Upcoming Events

Please use this space to add any support group meetings or useful dates.