This is Cookie. I am a parent of a child with Spina Bifida. I am contacting for two reasons 1) I would like to meet other parents of children with Spina Bififda, 2) I am doing research because of what I have noticed with my child. I was directed to this website to contact other families but I am anxious that I have been frozen out because of my research. It would be nice to know that is the case and I will go back to just getting on with it on my own.
From a frustrated Cookie (and sorry if that is not the case)